It’s time for all the disability rights, children’s rights, elder rights, waiting list rights, civil rights and human rights communities to realize that many of the cuts we’re seeing in our Medicaid and Medicare programs aren’t because of budget cuts, but because our state has auctioned off part of its program to a for-profit . . . → Read More: Action Alert: Please lend your voices to support our children and others who have none
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Our survey asks families if various elements of the “full EPSDT benefit” have been denied their children. One example: ten of twenty-five respondents have never been told that EPSDT entitles their child to visits to out-of-state specialists. Everything is paid for, from the airfare, to hotel, ground transportation and even a daily food allowance. . . . → Read More: Building your child’s medical advocacy team I formed this organization in August 2009 in order to extend the advocacy I was doing on my daughter’s behalf to other families in similar situations. I was in email contact with both the Center for Medicare and Medicaid Services (the federal Medicaid regulatory folks) and the Office for Civil Rights at DHHS as . . . → Read More: Advocating for our kids with disabilities Politicians, bureaucrats and insurance company executives make decisions about life-saving medical care for people with disabilities every day. When those decisions are based on financial considerations, such as the size of profit made by the company providing the care, Olmstead fails and people may die. Fourteen year old Mycal Johnston drowned from the . . . → Read More: Death by Medicaid: the victims of Olmstead’s failure |
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