It’s time for all the disability rights, children’s rights, elder rights, waiting list rights, civil rights and human rights communities to realize that many of the cuts we’re seeing in our Medicaid and Medicare programs aren’t because of budget cuts, but because our state has auctioned off part of its program to a for-profit . . . → Read More: Action Alert: Please lend your voices to support our children and others who have none
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Our children stand to lose all the federal civil and legal rights gained over the past fifty years if an official Obama Administration “friend of the court” brief to the Supreme Court is not withdrawn. Filed by Acting Solicitor General Neal K. Katyal on May 26, the amicus brief effectively exempts everyone receiving . . . → Read More: Parent Action Alert: Don’t let the Administration turn our kids into second class citizens The sample is small, but the results are unanimous: All respondents (41) reported being the victim of at least one illegal act by their state Medicaid providers. All nineteen states represented have violated US law, the provisions of The Social Security Act, the Americans with Disabilities Act and the Supreme Court’s Olmstead Decision. The . . . → Read More: Survey shows the human toll of for-profit Medicaid cuts I formed this organization in August 2009 in order to extend the advocacy I was doing on my daughter’s behalf to other families in similar situations. I was in email contact with both the Center for Medicare and Medicaid Services (the federal Medicaid regulatory folks) and the Office for Civil Rights at DHHS as . . . → Read More: Advocating for our kids with disabilities Politicians, bureaucrats and insurance company executives make decisions about life-saving medical care for people with disabilities every day. When those decisions are based on financial considerations, such as the size of profit made by the company providing the care, Olmstead fails and people may die. Fourteen year old Mycal Johnston drowned from the . . . → Read More: Death by Medicaid: the victims of Olmstead’s failure After receiving three separate complaints from Georgia moms unable to get diapers from Medicaid, I went to find somebody in Georgia would could provide direct help. The Georgia Advocacy Office sent the following email back, with direct contact information for anyone else in Georgia needing similar help. Your email was forwarded to me for . . . → Read More: Help for parents who can’t get Medicaid to pay for diapers Federal laws state, in no uncertain terms, that your state Medicaid provider cannot deny, limit or reduce what your physician says is “medically necessary.” I’m going to start by saying I am not a lawyer. I’m a mom, of an eleven year old girl who has severe brain damage and non-stop seizures. In 2002, . . . → Read More: Letters of Medical Necessity: When your doctor becomes a partner in advocating for your child A discussion recently came up on a mailing list I belong to about how many mic-key buttons the kids were getting through Medicaid. It ranged from twelve a year down to two per year. For those who don’t know, a mic-key button is a two inch long piece of plastic with an inflatable balloon . . . → Read More: What federal law entitles our children to By Summer Harrison, on December 17th, 2009 Two court decisions handed down by a US Federal District Judge in Georgia have essentially made a civil crime out of denying our children their medical legal rights. The bottom line effect of these decisions is to give parents and caregivers a level of control over deciding . . . → Read More: Major court victories for our kids’ legal medical rights By Summer Harrison, on December 31st, 2009 Medical necessity is the defining factor for all Medicaid services accessed through EPSDT (for children on Medicaid under 21) or any participants in a state’s 1115 or 1915 Medicaid waiver programs. The tendency over the past years has for states to try to exert control over determination . . . → Read More: EPSDT and “Medical Necessity” |
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