We have a new survey for the parents and caregivers of people with disabilities receiving Medicaid who are experiencing Medicaid service cuts. This survey will provide insight into the types of services being cut, and the who (state, non-profit or for-profit) tis making the cuts.
Please take our survey for the parents of children already on Medicaid. This will give us a chance to track how well the different states are following mandatory federal regulations about the care our children are supposed to receive.
Please sign our petition to our members of Congress to stop allowing Medicaid and Medicare to be sold to for-profit companies.

Action Alert: Please lend your voices to support our children and others who have none

It’s time for all the disability rights, children’s rights, elder rights, waiting list rights, civil rights and human rights communities to realize that many of the cuts we’re seeing in our Medicaid and Medicare programs aren’t because of budget cuts, but because our state has auctioned off part of its program to a for-profit . . . → Read More: Action Alert: Please lend your voices to support our children and others who have none

Parents are caregivers, not professionals

The National Organization to End Waiting Lists (NOEWAIT) has released a survey to gauge how often parents are told to rely on “natural supports” in caring for their children and loved ones with disabilities.

Many of us have been told that we should use our “natural supports” to provide services to ourselves and . . . → Read More: Parents are caregivers, not professionals

Building your child’s medical advocacy team

Our survey asks families if various elements of the “full EPSDT benefit” have been denied their children. One example: ten of twenty-five respondents have never been told that EPSDT entitles their child to visits to out-of-state specialists. Everything is paid for, from the airfare, to hotel, ground transportation and even a daily food allowance. . . . → Read More: Building your child’s medical advocacy team

Death by Medicaid: the victims of Olmstead’s failure

Politicians, bureaucrats and insurance company executives make decisions about life-saving medical care for people with disabilities every day. When those decisions are based on financial considerations, such as the size of profit made by the company providing the care, Olmstead fails and people may die.

Fourteen year old Mycal Johnston drowned from the . . . → Read More: Death by Medicaid: the victims of Olmstead’s failure