It’s time for all the disability rights, children’s rights, elder rights, waiting list rights, civil rights and human rights communities to realize that many of the cuts we’re seeing in our Medicaid and Medicare programs aren’t because of budget cuts, but because our state has auctioned off part of its program to a for-profit . . . → Read More: Action Alert: Please lend your voices to support our children and others who have none
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Our children stand to lose all the federal civil and legal rights gained over the past fifty years if an official Obama Administration “friend of the court” brief to the Supreme Court is not withdrawn. Filed by Acting Solicitor General Neal K. Katyal on May 26, the amicus brief effectively exempts everyone receiving . . . → Read More: Parent Action Alert: Don’t let the Administration turn our kids into second class citizens The National Organization to End Waiting Lists (NOEWAIT) has released a survey to gauge how often parents are told to rely on “natural supports” in caring for their children and loved ones with disabilities. Many of us have been told that we should use our “natural supports” to provide services to ourselves and . . . → Read More: Parents are caregivers, not professionals Our survey asks families if various elements of the “full EPSDT benefit” have been denied their children. One example: ten of twenty-five respondents have never been told that EPSDT entitles their child to visits to out-of-state specialists. Everything is paid for, from the airfare, to hotel, ground transportation and even a daily food allowance. . . . → Read More: Building your child’s medical advocacy team The sample is small, but the results are unanimous: All respondents (41) reported being the victim of at least one illegal act by their state Medicaid providers. All nineteen states represented have violated US law, the provisions of The Social Security Act, the Americans with Disabilities Act and the Supreme Court’s Olmstead Decision. The . . . → Read More: Survey shows the human toll of for-profit Medicaid cuts I formed this organization in August 2009 in order to extend the advocacy I was doing on my daughter’s behalf to other families in similar situations. I was in email contact with both the Center for Medicare and Medicaid Services (the federal Medicaid regulatory folks) and the Office for Civil Rights at DHHS as . . . → Read More: Advocating for our kids with disabilities Politicians, bureaucrats and insurance company executives make decisions about life-saving medical care for people with disabilities every day. When those decisions are based on financial considerations, such as the size of profit made by the company providing the care, Olmstead fails and people may die. Fourteen year old Mycal Johnston drowned from the . . . → Read More: Death by Medicaid: the victims of Olmstead’s failure |
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