It’s time for all the disability rights, children’s rights, elder rights, waiting list rights, civil rights and human rights communities to realize that many of the cuts we’re seeing in our Medicaid and Medicare programs aren’t because of budget cuts, but because our state has auctioned off part of its program to a for-profit . . . → Read More: Action Alert: Please lend your voices to support our children and others who have none
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The chair of the health policy department at George Washington University has warned of the potential “spill-over” effect into other state programs run with federal funds if the Supreme Court interprets too widely the Administration-backed policy paper on Medicaid submitted May 26. So who would be hurt if this happens, and everybody in state . . . → Read More: Who will be hurt and who makes out from the Administration’s new Medicaid policy? Our children could lose the right to challenge the medical decisions made by their Medicaid providers if an Administration-backed brief submitted to the Supreme Court is allowed to become policy. According to a legal analysis published today, the brief asserts “that beneficiaries of Medicaid and other safety net laws should no longer be permitted . . . → Read More: Could the Administration’s war on Medicaid be the death knell for EPSDT? Our children stand to lose all the federal civil and legal rights gained over the past fifty years if an official Obama Administration “friend of the court” brief to the Supreme Court is not withdrawn. Filed by Acting Solicitor General Neal K. Katyal on May 26, the amicus brief effectively exempts everyone receiving . . . → Read More: Parent Action Alert: Don’t let the Administration turn our kids into second class citizens The National Organization to End Waiting Lists (NOEWAIT) has released a survey to gauge how often parents are told to rely on “natural supports” in caring for their children and loved ones with disabilities. Many of us have been told that we should use our “natural supports” to provide services to ourselves and . . . → Read More: Parents are caregivers, not professionals I formed this organization in August 2009 in order to extend the advocacy I was doing on my daughter’s behalf to other families in similar situations. I was in email contact with both the Center for Medicare and Medicaid Services (the federal Medicaid regulatory folks) and the Office for Civil Rights at DHHS as . . . → Read More: Advocating for our kids with disabilities After receiving three separate complaints from Georgia moms unable to get diapers from Medicaid, I went to find somebody in Georgia would could provide direct help. The Georgia Advocacy Office sent the following email back, with direct contact information for anyone else in Georgia needing similar help. Your email was forwarded to me for . . . → Read More: Help for parents who can’t get Medicaid to pay for diapers By Summer Harrison, on January 6th, 2011 We have released two surveys that will help us see how well the states are following federal Medicaid statutes with regard to children and adults with disabilities. The first survey collects information based on the experiences of children and adults with disabilities currently enrolled in Medicaid. The . . . → Read More: Surveys will document compliance with Medicaid regulations protecting children and adults with disabilities February 27th, 2011 Last October, the US Department of Justice Civil Rights Division intervened in Missouri supporting the fact that diapers (incontinence supplies) are a civil right, even for adults with disabilities. Missouri is one of thirteen states where the Civil Rights Division has intervened publicly in support of individuals with disabilities since 2009. . . . → Read More: Parent Alert: Diapers as a civil right Somehow the entire section of the website organized under wordpress was hacked. The best I can do for now is to copy and paste the articles back for parent information. I’ll go back and re-enter weblinks later. It is an important time for us as parents and family caregivers to understand the legal and . . . → Read More: A quick fix after being hacked |
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