We have a new survey for the parents and caregivers of people with disabilities receiving Medicaid who are experiencing Medicaid service cuts. This survey will provide insight into the types of services being cut, and the who (state, non-profit or for-profit) tis making the cuts.
Please take our survey for the parents of children already on Medicaid. This will give us a chance to track how well the different states are following mandatory federal regulations about the care our children are supposed to receive.
Please sign our petition to our members of Congress to stop allowing Medicaid and Medicare to be sold to for-profit companies.

Action Alert: Please lend your voices to support our children and others who have none

It’s time for all the disability rights, children’s rights, elder rights, waiting list rights, civil rights and human rights communities to realize that many of the cuts we’re seeing in our Medicaid and Medicare programs aren’t because of budget cuts, but because our state has auctioned off part of its program to a for-profit . . . → Read More: Action Alert: Please lend your voices to support our children and others who have none

Who will be hurt and who makes out from the Administration's new Medicaid policy?

The chair of the health policy department at George Washington University has warned of the potential “spill-over” effect into other state programs run with federal funds if the Supreme Court interprets too widely the Administration-backed policy paper on Medicaid submitted May 26.

So who would be hurt if this happens, and everybody in state . . . → Read More: Who will be hurt and who makes out from the Administration’s new Medicaid policy?

Could the Administration’s war on Medicaid be the death knell for EPSDT?

Our children could lose the right to challenge the medical decisions made by their Medicaid providers if an Administration-backed brief submitted to the Supreme Court is allowed to become policy.

According to a legal analysis published today, the brief asserts “that beneficiaries of Medicaid and other safety net laws should no longer be permitted . . . → Read More: Could the Administration’s war on Medicaid be the death knell for EPSDT?

Parent Action Alert: Don’t let the Administration turn our kids into second class citizens

Our children stand to lose all the federal civil and legal rights gained over the past fifty years if an official Obama Administration “friend of the court” brief to the Supreme Court is not withdrawn.

Filed by Acting Solicitor General Neal K. Katyal on May 26, the amicus brief effectively exempts everyone receiving . . . → Read More: Parent Action Alert: Don’t let the Administration turn our kids into second class citizens

Parents are caregivers, not professionals

The National Organization to End Waiting Lists (NOEWAIT) has released a survey to gauge how often parents are told to rely on “natural supports” in caring for their children and loved ones with disabilities.

Many of us have been told that we should use our “natural supports” to provide services to ourselves and . . . → Read More: Parents are caregivers, not professionals

Building your child’s medical advocacy team

Our survey asks families if various elements of the “full EPSDT benefit” have been denied their children. One example: ten of twenty-five respondents have never been told that EPSDT entitles their child to visits to out-of-state specialists. Everything is paid for, from the airfare, to hotel, ground transportation and even a daily food allowance. . . . → Read More: Building your child’s medical advocacy team

Survey shows the human toll of for-profit Medicaid cuts

The sample is small, but the results are unanimous: All respondents (41) reported being the victim of at least one illegal act by their state Medicaid providers. All nineteen states represented have violated US law, the provisions of The Social Security Act, the Americans with Disabilities Act and the Supreme Court’s Olmstead Decision.

The . . . → Read More: Survey shows the human toll of for-profit Medicaid cuts

Advocating for our kids with disabilities

I formed this organization in August 2009 in order to extend the advocacy I was doing on my daughter’s behalf to other families in similar situations. I was in email contact with both the Center for Medicare and Medicaid Services (the federal Medicaid regulatory folks) and the Office for Civil Rights at DHHS as . . . → Read More: Advocating for our kids with disabilities

Death by Medicaid: the victims of Olmstead’s failure

Politicians, bureaucrats and insurance company executives make decisions about life-saving medical care for people with disabilities every day. When those decisions are based on financial considerations, such as the size of profit made by the company providing the care, Olmstead fails and people may die.

Fourteen year old Mycal Johnston drowned from the . . . → Read More: Death by Medicaid: the victims of Olmstead’s failure

Help for parents who can’t get Medicaid to pay for diapers

After receiving three separate complaints from Georgia moms unable to get diapers from Medicaid, I went to find somebody in Georgia would could provide direct help.

The Georgia Advocacy Office sent the following email back, with direct contact information for anyone else in Georgia needing similar help.

Your email was forwarded to me for . . . → Read More: Help for parents who can’t get Medicaid to pay for diapers